Keys to Successfully Managing Intellectual and Developmental Disabilities

The following recommendations can help families manage the process more effectively.

Emphasize Family Centered Care

Engaging families in the care process is crucial. Providing training and education to help caregivers understand the diagnosis, manage behaviors and access community resources is essential. As the child approaches adulthood, guidance on supporting employment, independent living skills and social inclusion is important. Transition planning should start in the elementary years, not at 21.

Create Support Groups and Peer Networks

Facilitating the creation of family support groups or peer networks can help families share experiences, reduce isolation and enhance their advocacy abilities.